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I HAVE NEWS! I HAVE NEWS! WE ARE GOING TO CHOP?!?!?! I seriously have whiplash from all of these changes! But progress is progress, right? Next up - Walker takes on Philadelphia ! #CHOP #philadelphia #WalkerStrong #medicalmama #medicallycomplex #noonans #hospital #travel #undiagnosed #nicugrad #genetics
So we are sort of at a stand still at the moment with Walkers 2nd opinion. Lots of paperwork and I need to get Vanderbilt, pediatrician, and current GI team on board before we move forward! Wish us luck with those conversations! #undiagnosed #WalkerStrong #cincinnati #medicalfamilies #medicallycomplex #medicalmama #gtube #2ndopinion #gastroparesis #genetics
When getting your Lupus diagnosis, please take this tip if your doctor says all of your labs are “normal”. #LupusDiagnosis #LupusAwareness #AutoimmuneWarrior #KnowLupus #DiagnosisJourney #LupusSupport #BloodworkEssentials #LupusCommunity #MedicalAdvocacy #ChronicIllness #HealthcareAwareness #EmpowerPatients #Rheumatology #LupusWarrior #PatientExperience #AdvocateForHealth #InvisibleIllness #LupusLife, #BloodTests101 #HealthJourney #HealthAndWellness #MedicalJourney #StayStrong #SelfCareMatters
The day I told my best friend that we were expecting twins, right before Twin A went to Heaven. A day we will never forget. #twin #twinpregnancy #twinannouncement #lupus #highriskpregnancy #lupuspregnancy #pregnancy #husbandsurpise
Today was Walkers GI Appt plus an afternoon EEG. This is a long one too but gosh ALOT happened! #tpn #broviac #gtube #granulationtissue #WalkerStrong #gastroparesis #GI #pale #autonomicdysfunction #autonomicnervoussystem #undiagnosed #medicallycomplex
This isnt much of an update. But it’s all I can offer at the moment unfortunately. Please keep my sweet boy in your prayers. @Kyle Gillespie . . . #nicu #nicubaby #nicufamily #nicumom #nicustrong #csection #newborn #postpartum #hospital #birth #kidneys @Mandy Gillespie @Mandy Gillespie
I’m so tired of asking others for help! Any other medical parents feel like this???? #medicalmom #WalkerStrong #advice #carline
An update on Faith’s ADHD meds! So now we are curious if her rash is from Jornay or is it 5ths disease?! #jornay #adhd #rash #fifthsdisease #allergy
35 week OB appointment took a bit of a turn today! So heres the update! . . . #lupuspregnancy #lupus #pregnantlife #pregnant #pregnancy #labor #laboranddelivery #fluids #IV #ivfluids #lupuswarrior #highrisk #highriskpregnancy